- One thing seems to stand out: amitriptyline at a 50 mg dose does really seem to help me sleep comfortably.
- Furthermore using voice recognition software as I am really is good for making me speak clearly. Its really good speech therapy!
- I remain suspicious of L-dopa: I don't think I've got the dose right. Reading around the literature makes me feel that the less dependent I am, the better. Increasing the dose seems to induce side-effects – dyskinesias -- after a year or so of use.
- Pramipexole seems to be a little or no value in my case. Does that mean that all dopamine agonists are of no use in my case? What should I try others?
- Doctor Mclean has referred me to the pain clinic at the Bangor Hospital and I filled out a long questionnaire from them about what is troubling me. So this is an avenue which may become useful to me: learning to deal with my pain. The clinic is multidisciplinary and even includes an acupuncturist which I should be happy to try if it could help.It continues to be true that if I undertake hard physical work, I generally feel better rather than worse afterwards, but the aching muscles soon return.
- I find that lying flat on the floor in the Pilates rest position for 20 minutes is very resuscitating. And using the practice of whole-body scanning, picked up from meditation procedures, in which I systematically relax muscle groups is helpful. Trouble is within in a few seconds, many of the muscles re-tension. My guess is that much of the pain is due to major muscle groups pulling against each other (because of incorrect messages from the brain?) So it is not surprising that I feel as if I've climbed a mountain the day before. I haven't, of course, but my muscles think I have!
That is the question in this personal account of a mysterious form of Parkinson's Disease (PD) from which I suffer, its progression and treatment
Friday, 11 January 2013
Some conclusions
It seems to me that I'm thrashing about in the wilderness of not knowing what drugs do help and what drugs don't.
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